Saturday, January 26, 2013

Angela's Cancer Story - Part 1 - The Diagnosis

Everyone who is diagnosed with cancer has a story. I asked Angela if she would be willing to share her story with the world, all the while knowing that it would be difficult emotionally for her to relive that part of her life. When you go through a traumatic experience in life, reliving it in your head can be almost as difficult as the initial experience.

Angela did not keep a diary of her experience, which she regrets. But this is what she remembers from that time.

It was June 1995 and Angela was a junior at Arlington High School. It was a couple weeks away from the end of the school year and she was looking forward to the summer. She had plans to hang out with her friends and was looking forward to going to an R.E.M. concert with her brother and sisters.

Angela was feeling a little bit bloated one day, nothing major. But she just really didn't want to go to school that day. She told her mom she was feeling bloated and that she had an upset stomach. Her mom let her stay home from school. While her mom was at work, Angela used this as an opportunity to lie on the couch, workout to some exercise tapes (the old VHS kind which she still has a pile of cluttering up our house), and watch some soap operas.

Angela's mom came home from work and asked her how she was feeling. Angela didn't really want to go back to school the next day so she decided to milk this a bit more even though she wasn't in major pain. She told her mom she was still bloated and that her stomach still hurts.

Angela's mother, maybe being a bit overly cautious, decided to bring her to the pediatrician in Arlington much to Angela's dismay. The pediatrician felt Angela's stomach, pressed on it in different places, and privately told Angela's mom that she felt something in Angela's stomach, and then told them that they need to go to Children's Hospital in Boston for further diagnosis. Angela wasn't told anything at this point other than she needs to go to the hospital.

Angela wasn't sure if it was just her nervousness upon hearing she had to go to the hospital or if it was real pain, but as time went on she truly did start hurting a bit and she was still feeling bloated.

Angela, along with her mother and father, went to Children's Hospital. After waiting a few hours she was brought to the emergency room. The emergency room doctors took turns feeling Angela's stomach and then she had an x-ray taken. The doctors still haven't told Angela what was going on at this point.

They did tell her that she would have to stay overnight. Angela got really nervous when they told her that. She was moved from the emergency room to a regular room at Children's Hospital.

The next morning, all of Angela's siblings came to the hospital. A biopsy was performed because the x-ray did reveal a mass in her stomach. A few hours later, two oncologists came into Angela's room and sat on the bed and told her that there's a mass in her stomach and that they performed a biopsy to see if they can find some more information. They told her the mass was about the size of a football and that the biopsy revealed that the mass was malignant. Angela, thinking that the word malignant meant the non-cancerous-type, smiled at this diagnosis. But then they continued to tell her that she has Burkitt's Non-Hodgkin Lymphoma.  Due to the size of the tumor and its potential to burst if it grew any larger which would likely have fatal consequences, they would have to quickly begin a very strict chemotherapy regiment to combat the cancer.

She was then told the potential side effects of the chemotherapy which included nausea, vomiting, fever, hair loss, and they continued on with the list.   But all Angela could hear was "hair loss".  That's when the seriousness of the diagnosis finally hit her and she started crying. The possibility of hair loss was a difficult thing for her to accept as would surely be the case for pretty much any teenage girl. Angela was told that they could not take the mass out by surgery.  Only chemotherapy could hopefully shrink the mass.

Almost as quickly as she went from a girl trying to take some time off from school to a girl diagnosed with a potentially deadly disease, chemotherapy would begin a couple days later...

NEXT - Part 2 - The Treatment

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